Sarcoma Awareness Month 2025: KNOW. ACT. ADVOCATE.

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This July, SPAGN and our global member organizations invite you to be part of an international campaign focused on recognizing the signs of sarcoma — and taking action.

Sarcomas are rare cancers with symptoms that often go unnoticed: a lump, swelling, persistent pain, or loss of mobility. These signs are frequently misread or dismissed, which can lead to delays in receiving the right care.

This year’s focus is on helping people notice what’s not normal, trust their instincts, and speak up — while encouraging healthcare providers to listen, refer, and investigate when something doesn’t add up.

From patients and caregivers to clinicians and advocates, every voice counts in the effort to make sarcomas visible and recognized.

📢Recognizing Sarcomas Starts with You 🎗️

.This Sarcoma Awareness Month, we’re encouraging people everywhere to know their normal, act when something feels off, and advocate for answers. When symptoms are recognized and taken seriously, people get the care they need faster.

Let’s work together to make sarcoma visible — in every clinic, community, and conversation.

📝Global Sarcoma Diagnosis Pathway Survey

Sarcoma doesn’t follow one path — and neither do the people affected by it. We’ve asked patients and advocates worldwide about their experience getting diagnosed with sarcoma. Their answers reveal a bigger of the patient’s journey and delays. 

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Are You Ready to Advocate for Better Diagnosis?

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What should patients and families do if they notice persistent or unusual symptoms like a growing lump or lasting pain?

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Why is sarcoma often misdiagnosed or diagnosed late in general practice?

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What role do healthcare providers play in early sarcoma diagnosis?

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